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Posts Tagged ‘Superman Sam’

RIP Zach Lederer. RIP Superman Sam.  RIP Liv Wise.   RIP So Many More. . . . 

In the last few months, amazing young people with so much life in front of them lost their struggle for life.  Brain cancer took their last breath away.  (Correction: Sammy died of refractory acute myeloid leukemia another form of cancer.)

Remembering. . . .

While I did not know any of these beautiful souls; my heart crumbles with each and every loss.  My entire being feels the loss and then remembers how much our family once suffered as we fought for Aryeh’s life.  Yes he not only thrived, but survived in spite of losing most of his teenage years to illness, a very large (6.5 cm all around) arachnoid cyst on the right temporal lobe of his brain.  Many sleepless nights, everlasting tears, intense pain, and two brain surgeries later, I still never go a day without remembering what happened.

Aryeh at the Kotel Summer 2012 - Seeing this photo touched me deeply.  At one time, the possibility of Aryeh thriving would have been a dream. . .. .

Aryeh at the Kotel Summer 2012 – Seeing this photo touched me deeply. At one time, the possibility of Aryeh thriving would have been a dream. . .. .

As a mother, I recall the sleepless nights, the fear of loss, the stress on our family, the financial realities, and the agony my son faced every moment of his life for over 3.5 years.  I never questioned why him, but I did always pray for his pain to cease in any way it could.  I hated seeing Aryeh in pain; it nearly destroyed me.  There was nothing I could do; sometimes it felt like no one could help. Eventually one special doctor made all the difference.Any time a loved one has to watch a child suffer is profoundly horrible.

There are no words to express the darkness that looms with each breath.  Even as you hope all will be ok, fear of hoping can be paralyzing too.  Each of us that have faced serious illnesses knows that sometimes there are no tomorrows.  Since March 2007, I see the world through different eyes.  I fear loss, but almost never forget to live fully.  While there is no such thing as a given, nearly every moment in life is precious.

Each of the losses above have flooded me with memories of Aryeh’s journey.  The journey to health from serious illness sucks and yet we still get to choose (mostly) how we navigate our journeys. All I can say is wow as the tears run down my face. My hope is that brain cancer and all serious illnesses find a cure. No one should have to endure this pain and/or this loss.

Remembering. . .

My heart goes out to Lederer, Sommer, and Wise families and to every family that has ever had to navigate a health journey.   Losing  is the worst.  May the souls of their loved ones be at peace; may their memories be a blessing for good.

For more information on the amazing young people mentioned above:

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