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Posts Tagged ‘celiac disease’

 

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Hope Cards answer so many questions that fill  my heart! http://www.bonesigharts.com/store/hope-cards

As I opened my eyes this morning, I quickly became aware that I was in the midst of some sort of  a spiritual metamorphosis. As soon as my pen hit the paper for My Morning Pages (journal), I felt  like a huge shift was on the horizon. I went from moody to grounded with each written word, but it took a lot of deep breaths and inner-work to go from Point A to Point B.

The most empowering transition seemed to come when I compared the a few of the moving parts of my life that have either jazzed my soul and/or crippled my spirit. Sometimes I feel like these two seemingly different concepts are actually ‘two sides of the same coin’.

Taking A Step Back
Two weeks ago, I took a bite of real bread and then another and another. As I was sinking my teeth into the first bite and then the second bite, I found myself thinking that this panini tasted so authentic, so real; the only problem was that it ACTUALLY was and I got really sick from eating it. As someone with celiac disease, eating a gluten filled panini was a disaster. History had taught me time and again that I would be sick for as long as three months from eating the panini.

The good news was that I understood what was happening and I had recently found some amazing health practitioners to help me strive for better health which meant that they were there to help me face my latest crisis. The bad news is that every fiber of my being hurt.

Over the years, I have learned that when I am most despondent or sick as in this case, I dig deep into the soil of life to figure out what is really hurting and how I can best heal.

Digging Deep
This morning, I allowed myself the time and space t go inward. It probably helps that I started waking up at 3:30. Within My Morning Pages, I admitted to myself that I felt off. My body hurt, my mind was struggling, and my spirit wasn’t up to par.  As someone who seems to rally at an intense level most of the time, I was aware that I needed to explore the thoughts racing around in my head.

What I found initially stunned me? And then, I allowed myself some space to re-frame the darkness and turn it into light.  I needed to knead the thoughts to allow them to flow.

Realization #1
I had a momentary fear that I was simply never going to reach my dreams.

  • If being healthy is a non-negotiable then why aren’t I further along in my health journey?
  • Why is it that I haven’t created my new blog called My Second Foundation in which I will be interviewing and writing about survivors of trauma?
  • Have I done enough or anything to make the world a better place?
  • If I truly want to have more time to do the things I love, why haven’t I done more to simplify my life?
  • Am I doing enough to develop my writing?
  • And when will My Second Foundation, my nonprofit, have wings?

All of these questions/thoughts challenged me and will continue to challenge me.  And while I wish I could be doing more of what I love, I am blessed to be on a path that I love.

Breathing deeply, I need to do a better job of celebrating what is as I strive for each and every one of my dreams.

Realization #2
As I focus on becoming the healthiest me that I can be, I need reconsider how I see this process. I am on Day 3 of what I will now refer to as My Journey Towards Life. With 122 days until my birthday, I have the ability to do the holy work of taking care of my body, my mind, and my spirit. I am on the journey to make my life the best possible life it can be. My hope is that on Day 124, I may stop ‘officially’ counting, but I will count all the days of my life. 🙂

While I love life and I love my life, I want to better engage in living more consciously, physically moving and keeping my heart pumping. Being healthy is so much bigger than I realized. My body, my mind, and my spirit need to be cared for; I am a package deal.

Over the last few days, I have been doing a lot of the practices given to be by my Aryuvedic Practitioner and acupuncturist, massage, drinking cleansing teas, walking, and writing. I have also been spending time with my sons and connecting with friends. Surprisingly or not so surprisingly, I have been sleeping and napping a lot.

It feels good to make taking care of myself a norm.

Realization #3
I love deeply and I am spiritually committed to those I adore. And yet, I nurture relationships that are safe instead of seeking connections that can bloom into partnerships.

Perhaps that is what is right for me, perhaps not. . . I think it is time for me to delve deeper so that I can discover what I really want.

I need to face the myriad of feelings and trust what insight follows.

Wrapping Up
At the end of my very soulful writing time I asked myself some guiding questions.

  • How can I connect more deeply with that which I am and that which I want to be?
  • How do I create a world that honors the holy trinities (per Glennon Doyle Melton) of body, mind, & spirit?
  • How do I navigate my sadness over some deep losses.

Picking Cards
After I ask guiding questions of myself, I often pick cards from different decks.  The beauty of picking these cards is that each of them usually answer the very questions that I had originally asked for guidance. Today, all three of my card choices did! It was mind blowing!!!

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This I believe
The insights that come during the early morning hours have the power to change you if you have the inner-strength to listen.

May the seeds that were planted this morning sprout with beautiful growth! May I become even MORE ALIVE!

Thank you for taking time to listen to today’s rambles.

Onward with love, light, & blessings,
Chava

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Every time you go into the fire,
you come out with a new life and it’s better than the last one.
~Martha Beck 

Twelve days ago I ate gluten for what I hope will be the last time.  To say that I felt absolutely awful is an understatement.  Every fiber of my being hurt to the extent that nine days after the accidental consumption I ended up in the ER.

Within 20 minutes of eating the gluten-filled panini, I knew I was in for a challenging evening. Within an hour, I felt so sick that for a dramatic moment, I was praying that life would cease.  The good news was that even when I felt the extraordinary discomfort, I knew I would find a way to cope quickly; I also knew that I was in for up to three months of core exhaustion and intense joint pain. Saturday night, October 1st ended up being a total bummer that ruptured a period of spiritual calm. It is hard to remain calm when you are in the midst of being over the top dramatic and crippled with pain.

And then there was this past Sunday, when the pain had escalated to about 8.5 or higher on the 10 point pain scale and I started feeling nauseous, was fighting a fever, and struggled to walk. Going to the ER seemed prudent at the time and like the only option too. With the sense of vulnerability overflowing, I caved into going to a place that lacked the ability to treat me with dignity and made me feel small and insignificant.  Sigh.

Fire vs Shredder

Photo Courtesy of Aryeh Grossman

AND I am now emerging!

My visit to the ER was a reminder that I had recently surrounded myself with a fabulous team of healers. Some of them know me and are directly helping me navigate my health and others are people that are inspiring me spiritually via books, podcasts, and social media. I am so excited to actively engage in my new healing journey!!!

For someone with celiac disease, the gluten fire petrified me, but it is now helping ground me in my health journey. With a team consisting of my sons, my friends, amazing health practitioners, and some very wise souls, I am surrounded by support. The fire of October 1st ignited the importance of what Glennon Doyle Melton refers to as the “trinities – body, mind, spirit. The warrior lives out all three lives: a physical life, an intellectual life, and a spiritual life.”

I consider myself to be a spiritual warrior. My journey to self care has been intense over the years. I have struggled to loosen and/or release some tightly wound ropes that kept me bound to pain and darkness.

Through chanting, drumming, writing, movement, and other creative endeavors, I have found new norms. Six years ago, I openly did a health journey that focused on staying away from eating foods that caused me health challenges.  I lost a ton of weight and I stopped getting UTI infections just be giving up soda, caffeine, and sugar.

While I kept off most of the weight, I am now doing low levels of the above mentioned foods, although effective tonight, I am making a conscious decision to go back to refraining from those foods, plus making some lifestyle decisions.

Perhaps it isn’t ironic, that the decision to create a list of non-negotiables and to openly share my health journey happened on Yom Kippur.  As I sat in services, I was overwhelmed with both a sense of loss and a sense of joy. The loss was that I wasn’t the healthiest that I could be, but the joy came from the realization that I am in the midst of doing good work and I can do even  better work. All three of the ‘trinities’ will get my attention each and every day of this journey.

There are 124 days until my 51st birthday which is:

  • 10,713,600 seconds
  • 178,560 minutes
  • 2976 hours
  • 17 weeks and 5 days

Over the course of this time, via my blog I will share how I am moving forward, who is inspiring me, my practitioners, and the impact that this journey has on my life. Via Facebook, I will share the daily countdown to my birthday and the daily highlights/challenges with each step.

I am so blessed to have my daily writing practice, a new Ayurvedic Practice, a new Acupuncture Practice, and hopefully what will be regular massages with an AWEsome healer. And then there are the daily gifts that I continue to find each and every day. And finally, I feel humbled to have an amazingly supportive work environment to keep me grounded as I find new ways to care for my body, my mind, and my soul.

As Yom Kippur came to a close, I became aware that my physical pain was slipping away and the gates were opening to some very profound and enlightening possibilities.

Onward with love & light,
Chava

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and i said to my body. softly. ‘i want to be your friend.
‘ it took a long breath. and replied
‘i have been waiting my whole life for this.’

~nayyirah waheed

 

 

Shadow at a labyrinth

My body aches. My spirit is a little bruised. And I really am OK.

Last Saturday, I became contaminated with gluten which left me completely debilitated and unable to fully focus. With my joints swollen and an inability to fully think, I became temporarily despondent. Of course, I also worried that this was not simply a reaction to someone with celiac disease being contaminated with gluten. Instead I thought that perhaps I had a serious illness and the timing of me being contaminated with gluten was simply a coincidence. I think many of us get dramatic when we are physically and emotionally depleted.

After a few days of feeling absolutely horrible, I became desperate, took a deep breath, and asked my Facebook Village for help. And of course they did. Even more amazing, I listened. I decided to make some different food choices, take supplements, drink a lot more water, and allow myself to go through some of my deep frustration and sadness.

In response, it is so awesome how eating the right foods, etc. gave my body a chance to begin healing and made me feel a little better with each passing day. This morning, I felt a better than I did yesterday and this evening not as well. Being on a seesaw is never fun for me, but it is a normal trajectory in any healing journey. While I have a ways to go, I know what I have to do. AND I know that all will be ok.

There are some bummers in this journey. I have decided that it is time to refrain from eating out again unless I eat simple salads or perhaps a few really sensitive vegetarian restaurants. I also realize that it is time for me to find some new doctors because my reaction to gluten contamination is growing more significant. And I am also dealing with how vulnerable I feel around this challenge.

Opening up and sharing my inner thoughts is so very hard when anxiety seems to reign inside my body. Yet over the last couple of years, I have learned time and again that I am blessed with good friends who really are present when I need them. While remaining in the shadows is somewhat easier when I am having a challenging time, the key is to take a deep breath (when ready) and reach out as appropriate.

Would love to know your thoughts and how you move forward when you feel paralyzed in any way.

With love, light, and blessings,

Chava

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Wherever you go, possibilities surround you! By opening both your eyes and your heart, a door will always appear.

closedOvenDoor

Have you ever noticed how many different types of doors exist in the world?  Nearly each and every door leads to an opportunity.  Some doors are physical; other doors are metaphoric.  All doors lead to opportunity.

Last Friday, my boys and I really wanted to make challah.  Friends of ours had introduced us to Tom Sawyer flour which was supposed to work cup for cup the same way that regular flour worked.  So with our new bag of Tom Sawyer Flour in hand, we found an old challah recipe from our pre-celiac days and attempted to make challah.

On Facebook last Friday, I acknowledged our latest challah fiasco when I posted:

“There is good news and bad news:

“It is with great sadness that I share that my first gluten free challah in my new home needs to visit the garbage disposal.

“The good news is that for 20 minutes I had the opportunity to prepare a challah dough that felt absolutely amazing.

“Sigh. . .”

The better news is that Aryeh allowed NONE of this attitude to emerge.  He popped our very flat challah back into the oven to cook more.  While it never rose, it cooked a little – yay!

Funny that the challah seemed to proof beautifully, yet it lacked the ability to actually rise.  Well at least, Aryeh’s saw the possibilities and forced  us to continue with the challah making plan; there ended up being no garbage disposal for our challah.  And on top of that, It ended up tasting amazing.  The biggest problem with this initial challah making scene was that I gave up waaaayyyyyyy too quickly!!! I am so grateful that Aryeh had faith!  We ended up with very flat (didn’t rise), but awesome tasting challah.

challahFlat

Our Shabbat dinner was amazing, our company was enjoyable, and the next morning Aryeh decided to make our very dense challah into french toast.  We took turns chiseling (cutting :)) the challah into small slices of challah.  It was hard on the hands, but awesome for the spirit.  It felt so nice to actively turn a dense block of challah into a work of art.  In my opinion all baking and cooking is a form of art.

TransformationChallah

Cutting the challah took enormous energy and strength, but with the use of a little muscle and a happy disposition we were able to turn the dense challah brick into sliced challah.  And we never wasted even a crumb.  (OK, maybe we lost a few crumbs. ;))

SlicedChallah

After soaking the challah and allowing the egg to moisten the challah, Aryeh started the process of making the challah into french toast.  It really is an art-form to turn a challah brick into french toast.  Loved seeing my son make french toast happen.

InFryingPan

So my pessimism had no place in the challah making or in the french toast creations.

FrenchToast

This past Shabbat’s challah seems to have be sa metaphor for the way I move forward in life.  For the most part, I believe in pushing forward and finding the opportunities that exist beyond each and every door.  So while the challah might have initially appeared to be a failure, it ended up being awesome from start to finish.  The challenge ended up being a gift.  Even though, the challah was dense and hard, it also made for the most flavorful  bread and french toast we have had in a long time.

Opening the door, in this case the oven door, to possibility allowed the boys and I to enjoy every moment that surrounded this past Shabbat’s challah.  The prepping brought back memories and led to family time; turning success into failure allowed for many lessons; and the challah and subsequent french toast tasted yummy!

May we all find the the open doors, the gifts in what is.

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